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Determinants and Effects of inadequate health literacy in chronically ill (DHL-C)



International studies show that inadequate health literacy is associated with increased mortality and morbidity rates, higher rates of hospitalizations as well as an avoidable use of health care services and therefore avoidable costs. In order to improve health literacy, strategies and instruments are required that are adapted to the needs of the respective targeted population. In Germany, there is a lack of sub-group analyses that are focused on the determinants and effects of inadequate health literacy in the chronically ill. Furthermore there are no instruments that measure health literacy and cancer literacy in the context of the German health care system.

In this project that is conducted in cooperation between the IGKE and the IMVR the following aims are pursued. First, determinants of inadequate health literacy of breast cancer patients in Germany are to be identified. Therefore explorative analyses are conducted to investigate the association between socio-demographic, personal and health-related characteristics and inadequate health literacy in the breast cancer patients. Second, the economic consequences of low health literacy on health care utilization and costs are analysed. Third, the constructs of health literacy and cancer literacy are to be defined from the cancer patients’ perspectives. Based on these results it is planned to develop an instrument to measure these constructs. Fourth the association between health literacy and fear of progression is investigated.

The analyses are based on quantitative data of the breast cancer patients from the PIAT-study, data from the health insurances as well as qualitative data that is generated in focus groups with patients recruited from the PIAT-study.



SpeakerProf. Dr. Stephanie Stock, Institute for Health Economics and Clinical Epidemiology (IGKE)

Jun.-Prof. Priv.-Doz. Dr. Nicole Ernstmann, Institute of Medical Sociology, Health Services Research and Rehabilitation Science (IMVR)

Participating Investigator
Prof. Dr. Christian Rietz, Department of research methods

Coordinator
Sibel Altin, M.Sc., Institute for Health Economics and Clinical Epidemiology (IGKE)

Sarah Halbach, Institute of Medical Sociology, Health Services Research and Rehabilitation Science (IMVR)